Associate Professor Maria Inacio
|Day Presenting:||Tuesday 30 October|
|Session||Concurrent C2- Research|
|Presentation Title||The registry of older South Australia (ROSA):|
|Company||Registry of Older South Australians|
Introduction: Australia is an ageing country. In 2016, 15% of Australians were over 65 years old and this proportion is expected to increase to 19% by 2031. Australia’s ageing population puts significant demands in the aged care and health care sectors. To monitor the provision of aged care and health care services to older people in South Australia the cross-sectoral multidisciplinary Registry of Older South Australians (ROSA) was developed. ROSA is the resource to create the evidence necessary to: support future allocation of resources for our ageing community, improve aged care and health care services delivery, and support industry in the development and evaluation of new technology and optimal strategies that promote healthy ageing.
Objective: This presentation describes the ROSA’s framework, current cohort, and expected impact.
Methods: Through a partnership of 13 institutions, which includes the South Australian Health and Medical Research Institute, 3 universities, the state health department and primary health networks, data integrating authorities, 3 aged care providers, and 2 consumer representative advocacy groups, a Registry to capture Australians receiving aged care services and their health services utilisation was developed.
Framework: ROSA is built from information captured by the Australian Commonwealth and SA Health Authority, linked by two data integrating authorities, and housed on a secured data platform. The ROSA contains information on the sociodemographic, health, function, psychological, social, home and safety assessment and concerns characteristics, aged care services, general health services, medications, and mortality of people receiving aged care services. Furthermore, ROSA has a Living Lab component, which is the infrastructure to conduct new technology evaluation and clinical trials within the Registry.
Cohort: ROSA’s Historical (1997-2016) national cohort captures 2.9 million people who received almost 12 million aged care services. ROSA’s Prospective cohort (2018-onwards) will capture 16,000 South Australians/year.
Expected Impact: ROSA’s monitoring of the population receiving aged care services in Australia is expected to influence the provision of aged care services through its partnerships with aged care providers, promote and facilitate medical device technology through its Living Laboratory, and demonstrate impact on the greatest health vulnerabilities of this population through its focused areas of research (e.g. polypharmacy, unwarranted health care utilisation, medical complications).
Conclusions: With a prospective enrolment of 16,000 participants/year throughout South Australia, ROSA is an ambitious and valuable effort that can be used to monitor the under-studied and vulnerable population receiving aged care services and their health services.
A/Prof Inacio is an epidemiologist with expertise in the areas of population health surveillance systems and utilisation of existing data and informatics to enhance these systems. She is the Director of the Registry of Older South Australians (ROSA), housed at the South Australian Health and Medical Research Institute (SAHMRI), which is a population-based multi-disciplinary data platform that connects the cohort of people receiving aged care services in Australia to their health services utilisation. The ROSA was funded by the SA Premier’s Research and Industry Fund ($4m) and members of the Healthy Ageing Research Consortium ($4.9m), which was established by Prof Steve Wesselingh, SAHMRI’s Executive Director.
2001 BS, University of California, San Diego, USA
2002 MS, Dartmouth College, USA
2013 PhD, University of California, San Diego, USA
Current Appointments: Director, Registry of Older South Australians (ROSA), UniSA Adjunct Associate Professor, Australian Government Therapeutic Goods Administration (TGA) Specialist Advisor.